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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi all
like barbiegirl i have sjorgrens.RA/and now diagnosed with fybromyalgia--add menires to that list!!!
my questionis does anyone else suffer with throat problems--painful not sore and recurring i had tonsilitis 2 weeks ago -which was sore but now have very painful throat--i say recurring as this is the UMPTEENTH time this year---normally starts when i'm tierd and working but i have been of work nearky 3 weeks now--initially signed off then 2 weeks booked hols
any advice
ta caz x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 263
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I was diagnosed with RA about 4 years ago . I have mtx injection 20 mg and Plaquinel . I never had throat problems till the last few weeks. A month ago i had a really painful throat it cleared up but its back again. Not like a sore throat with a cold more like a painful throat. Decided to miss my injection this week to see if that will help. I've never missed it before so i am quite worried . Due for blood tests on Thurs. Iwill see what the nurse says if it has'nt cleared. Kathleen Mc.
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Hi Carol - I have this a lot too. I have SS and RA. I get a particular sore throat that seems to come and go over about 3 weeks till I give in and get antibiotics.
It is a 'high up' sore throat that always includes the very back of the roof of my mouth as well as the ear and glands on one side. It's different to the tonsilitis throats I used to get before my immune system went into overdrive.
Sorry got no answers Carol, but at least I can empathise. Difflam spray helps a little XX Ailsa
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Carol, yes, I have those problems too, just lately the roof of my mouth feels sore and as if there is something stuck to it. Gross!!! Havent actually told doctor or anyone so far. Have an appt at rheumy on 22nd Oct, and then an appt with the oral dept of the Sjogren's clinic on 17th Nov. Also so many mouth ulcers, at the moment my bottom lip has a huge one, and inside top lip is almost as bad. Always have a few small ones, put that down the to mtx, but its definitely worse. I hope you can get to the bottom of it, will keep checking in to see how you get on, take care x BARBARA
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 263
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Ailsa-H wrote:Hi Carol - I have this a lot too. I have SS and RA. I get a particular sore throat that seems to come and go over about 3 weeks till I give in and get antibiotics.
It is a 'high up' sore throat that always includes the very back of the roof of my mouth as well as the ear and glands on one side. It's different to the tonsilitis throats I used to get before my immune system went into overdrive.
Sorry got no answers Carol, but at least I can empathise. Difflam spray helps a little XX Ailsa Can you tell me what Difflam spray is please Ailsa and where can i buy it ?
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello all
I don't suffer but feel for you all as sore throats and ulcers are awful.
Rose
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Difflam spray (benzydamine)
Main use Active ingredient Manufacturer
Inflammation in the mouth and throat Benzydamine hydrochloride Meda Pharmaceuticals
How does it work?
Difflam spray contains the active ingredient benzydamine hydrochloride, which is a type of medicine called a non-steroidal anti-inflammatory drug (NSAID). Benzydamine hydrochloride is a painkilling medicine used to relieve mild to moderate pain and inflammation in a particular area. It is most effective if applied directly to the area affected.
Benzydamine works by preventing the formation of prostaglandins.
Prostaglandins are produced in response to injury and certain diseases and conditions, and cause pain, swelling and inflammation. Benzydamine blocks the production of these prostaglandins and is therefore effective at reducing inflammation and pain.
Benzydamine also acts as a local anaesthetic, causing numbness and so pain relief at the site of application.
Difflam spray is sprayed directly into the mouth or throat to relieve pain and inflammation.
I get it in Boots or Superdrug - if you like pernod, you won't mind this. Hope it works for you too XX Ailsa
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi all
thanks for yor replies
it must be to do with RA etc
mine is painful not sore and goes thru neck/ears and like you roof of my mouth is also sore--the doc i saw this time says the pain is due to very swollen glands in throst and neck
i had urgent blood test on weds along with another visit to doc same thing painful but not soe throat---short course strong penicillin this time-- but as usual the bloods came back as normal--sometimes i do wish they would show something--no i don't!!!!!!
while it has helped with pain i still feel b---- awful
not sure where i picked this throat prob up as i haven't been in work for over 2 weeks--having been signed off then on hols---
due back to work on tues but if i fell no better it will be back to doc's on monday
i have appoint at rhuemmy on friday next week so i will mention this then--will keep you posted--i hope this won't set things back as rhuemmy suggested to start MTX next time she sees me
i hadn't heard of difflam spray--i'll get some and keep in.
thanks again all
caz xx
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Rank: Advanced Member Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Hello Caz,
Sorry to hear that you are still sufferring. I hope you get on well next week at the Specialist.
I also go next week as to many of us. We can all report back how good / bad the medical
staff with all of us
Rose
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi rose
Hope your appointmant goes ok
caz x
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi all
been signed off again this week
post viral faitigue!!
yesterday tho thraot back to square one sore and now my voice is all funny
arggggggggggggggggg
anyway doc says i can still keep rheumy appoint tomorrow as i haven't got a temp and to gargle with soluble asprin--not to be swallowed!!!!
will keepp you posted
caz x
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Rank: Advanced Member
Groups: Registered
Joined: 12/21/2009
Posts: 106
Location: cornwall
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hi all
been signed off---again!!!!
throat still playing up and mood ---sooooo low--dr says not depressed--not enough symptoms
will need to go back i'm sure
hubby now has same throat and it seems to be coming back my way!!!!!!!!!!!!
CAZ X
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